Angelman Syndrome Foundation (ASF)

https://www.angelman.orghttps://angelman.org/contact/info@angelman.org

About the Organization

The Angelman Syndrome Foundation is a U.S. nonprofit organization dedicated to advancing awareness, treatment, research, education, and family support for people affected by Angelman syndrome, a rare neurogenetic disorder.

Policy Goals

Rare disease research funding, medical and scientific research support, patient and family services, disability and caregiver support, healthcare access and treatment awareness, and public education related to Angelman syndrome.

Funding

Primarily supported by charitable donations, fundraising, grants, and contributions from families, supporters, and philanthropic partners.

Affiliates

Angelman syndrome patients and families, clinicians and researchers in the Angelman syndrome community, and supporters involved in ASF programs and events.

Legal Structure

Non-profit organization

Opposing Bills

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