Association for Frontotemporal Degeneration

https://www.theaftd.orghttps://www.theaftd.org/contact/info@theaftd.org

About the Organization

The Association for Frontotemporal Degeneration (AFTD) is a U.S.-based nonprofit advocacy and support organization focused on frontotemporal degeneration (FTD). Its mission is to improve the quality of life of people affected by FTD and to drive research toward better diagnosis, treatment, and a cure.

Policy Goals

Health and biomedical research funding, dementia awareness and education, caregiver and patient support services, access to diagnosis and care, and advocacy for research and appropriate affordable services.

Funding

Primarily supported by individual donations, grants, and fundraising campaigns; it also raises funds through events and charitable contributions.

Affiliates

Associated with the FTD community, researchers, clinicians, caregivers, and partner organizations such as the Alzheimer's Drug Discovery Foundation through the Treat FTD Fund; prominent public-facing leadership includes its CEO and board/community advisors.

Legal Structure

501(c)(3) nonprofit organization

Opposing Bills

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