Axis Advocates is a grassroots advocacy organization focused on education, patient support, and policy advocacy for people living with sickle cell disease. It works to improve health outcomes, strengthen connections to the medical community, and support research and treatment access.
Sickle cell disease education, patient advocacy, healthcare access, stem cell and medical research funding, and legislation affecting treatment and support services for people with chronic illness.
Primarily supported by donations and community fundraising; it appears to operate as a donor-supported nonprofit organization.
Founder Adrienne Shapiro; board and staff include Steven Shapiro, Dr. Janice Johnson, Ron Shapiro, LaTanya Kirk-Carter, Chloe Spencer, and John Spencer.
non-profit
