Hemophilia Federation of America (HFA) is a national, patient-led non-profit founded in 1994 that advocates for people with hemophilia and other inherited bleeding disorders. HFA’s mission is to improve quality of life through advocacy, education, community-based services, and efforts to ensure access to safe, effective and affordable therapies and comprehensive care.
Advocates for expanded, affordable health coverage and access to clinically appropriate treatments (including specialty and gene therapies); protections for blood and product safety; preservation of patient assistance and copay support; funding for public health and research programs (CDC, HRSA); support for specialty care networks, newborn screening, and policies addressing women and under‑served populations with bleeding disorders; mental health and social services for affected families.
Mixed funding model: individual donations and membership support, foundation and government grants, revenue from events and programs, and corporate sponsorships and unrestricted support from pharmaceutical and biotechnology companies; HFA policy limits any single funding source to under 49% of the annual budget.
A federation of state and local member organizations (50+ affiliates), collaborative relationships with the National Hemophilia Foundation and the World Federation of Hemophilia, partnerships with clinicians, specialty pharmacies, research institutions, and patient advocates.
Non-profit 501(c)(3) patient advocacy organization
