The Immune Deficiency Foundation is a U.S. patient advocacy and education organization focused on primary immunodeficiency (PI) disorders. It works to improve diagnosis, treatment, and quality of life for people affected by PI through education, support, advocacy, and research.
Health care access and coverage, insurance appeals and protections, diagnostic access, patient education, research funding, newborn screening, and public policy affecting people with primary immunodeficiency and related rare disease communities.
Primarily donor-supported, including individual contributions, grants, and fundraising activities.
Works with clinicians, scientists, patients, families, and its Medical Advisory Committee; closely associated with the primary immunodeficiency community and related advocacy partners.
501(c)(3) nonprofit foundation
