National Down Syndrome Society (NDSS)

https://www.ndss.orghttps://www.ndss.org/contact/info@ndss.org

About the Organization

The National Down Syndrome Society (NDSS) is a national advocacy organization dedicated to enhancing the quality of life for individuals with Down syndrome and promoting their full inclusion in community life. Founded in 1979, NDSS works to advance public awareness, provide resources and support to families, and advocate for policies that ensure equal rights and opportunities for people with Down syndrome.

Policy Goals

NDSS typically advocates for disability rights, inclusive education, healthcare access, civil rights protections, employment opportunities, Medicaid and Social Security support, and federal and state policies that promote inclusion and prohibit discrimination against individuals with Down syndrome and other intellectual and developmental disabilities.

Funding

Primarily funded through individual donations, corporate sponsorships, foundation grants, and fundraising events.

Affiliates

Works with a nationwide network of Down syndrome advocacy organizations, disability rights coalitions, healthcare providers, and self-advocates; collaborates with members of Congress through the Congressional Down Syndrome Caucus.

Legal Structure

Non-profit organization

Opposing Bills

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