Parent Project Muscular Dystrophy (PPMD) is the largest U.S. nonprofit focused entirely on Duchenne muscular dystrophy. Founded in 1994 by Pat Furlong and other family advocates, it works to accelerate research, improve standards of care, support families, and expand access to approved therapies for people affected by Duchenne and Becker muscular dystrophy.
Biomedical research funding, rare disease drug development, FDA and regulatory policy, access to therapies, clinical care standards, patient support, and federal/state advocacy for rare disease and disability-related issues.
Primarily philanthropic donations, fundraising campaigns, grants, and partnerships supporting its nonprofit mission.
Pat Furlong; Duchenne community families and advocates; scientific and clinical care partners; PPMD staff and board leadership.
non-profit
