The Pulmonary Hypertension Association is a patient-led nonprofit organization dedicated to supporting people affected by pulmonary hypertension, a rare and life-threatening lung condition. It provides education, patient and caregiver support, advocacy, and research promotion to improve care and extend the lives of those living with the disease.
Health care access, patient advocacy, rare disease awareness, research funding, insurance coverage, Medicare/Medicaid access, quality of care, and federal and state health policy affecting pulmonary hypertension patients and caregivers.
Primarily donor-supported, including individual donations, fundraising events, grants, and other charitable contributions.
Patients and caregivers, health care professionals, researchers, and a nationwide network of pulmonary hypertension care centers; founded by patients and headquartered in Washington, D.C.
Non-profit organization
