The Myositis Association (TMA)

https://www.myositis.orghttps://www.myositis.org/about-tma/contact-us/tma@myositis.org

About the Organization

The Myositis Association (TMA) is a patient-centered nonprofit organization dedicated to improving the lives of people affected by myositis, a group of rare inflammatory muscle diseases. It provides education, peer support, advocacy, and research funding to advance treatment and awareness.

Policy Goals

Rare disease and health care policy, biomedical research funding, patient access and support services, disability and caregiving issues, public awareness and advocacy for chronic and rare conditions

Funding

Primarily supported by individual donations, fundraising, grants, memberships, and charitable contributions

Affiliates

Founded by Betty Curry; works with myositis patients, caregivers, clinicians, and researchers; associated with its research grant and fellowship network

Legal Structure

501(c)(3) nonprofit public charity

Opposing Bills

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